Parents Speak Out on Their Search to Find Cure for 2-Year-Old Son's Rare, Fatal Disease
Photo: The Vauclare family Two parents are in a race against time to find a cure for their 2-year-old son who was diagnosed in 2018 witha rare and fatal disease. The condition,Neuroaxonal Infantile Dystrophy, is a disorder that affects the nervous system, and has a life expectancy of 5 to 10 years. There are only 150 children worldwide who have been diagnosed. As the years go on, children experience “progressive deterioration of cognitive functions (dementia), and they eventually lose awareness of their surroundings,” according to U....