patient with endometriosis around the domain are still being given controversial advice to “ treat ” their condition by get under one’s skin pregnant , despite a lack of evidence that it really work , new data let on . The resume of over 3,000 patients with a medical diagnosis of adenomyosis was run by a team from the University of Adelaide , the University of Sydney , and the charity EndoActive .
Endometriosis is not a rare shape – theWorld Health Organizationestimates that it bear on around 10 percent of all female of reproductive age . Despite its prevalence , however , and as we have unfortunately seen so frequently when it arrive tofemale reproductive health , a veil of misinformation anddisbelieftends to environ the condition .
In cases of endometriosis , the tissue paper that normally forms the lining of the womb , which is shake off during amenstrualperiod , grows aroundother organsin the dead body . symptom vary greatly depend on the location and extent of the abnormal tissue paper increment , but typically include passing painful menstruum , continuing pelvic pain in the neck , pain during sex , and intestine issues . adenomyosis can also lead to infertility .
According to the source of this new study , even with these issues that can negatively impact character of life story , diagnosis is delayed by an average of over six age .
In recent times , more researchinto the condition has start to emerge , includingnew insightsinto thepossible causes . But there ’s no cure as yet , and the latest research usher how patients who may have waited years for a diagnosing are sometimes being given aesculapian advice with no grounds to support it .
The squad survey 3,347 people with a clinical diagnosis of adenomyosis , ask about their patient experience . Over half of them ( 1,892 ) divulge that they had been advise to try and get meaning , with 36 percent of these being told that it would cure their shape .
In 90 percent of these case , these recommendation were given by a health care professional , such as a gynecologist .
“ maternity or have a babe is n’t a treatment for adenomyosis and this advice from health professional can have negative impact on those who receive it , ” say co - author and fertility expert Professor Louise Hull in astatement .
“ While a third of the respondents sense the advice was appropriate given their situation at the time , many other women in this sight reported feeling too unseasoned to have a sister and felt stressed and pressured after being give this inappropriate albeit well - intentioned advice . ”
Some of the survey responses documented in the authors ’ theme , divide into seven broad themes , give an insight into the impact that this advice can have on patients .
Some respondents said they already knew thatpregnancywas not an evidence - base discussion for endometriosis , or rejected the advice because it was unsuitable . “ I was 13 . It was n’t appropriate , ” said one patient . “ As bad as I felt I know in my heart I would n’t be well enough to take care of a babe . I could just walk [ two and a one-half ] weeks out of the month , ” enounce another .
Others took the advice to pith , which for some had a negative effect on their genial health . “ I became preoccupied with babies , pregnant women , getting fraught , the thought process that I would never be capable to give birth to my own nestling , ” take one reply , while another confided , “ It was a nightmare for me and something that impacted me greatly on an emotional level . ”
Some of the patients also key out the essence it had on theirrelationships : “ It ended up ruining my kinship as I felt a huge pressure to have minor untried and my partner could n’t understand the intense conversation at a young eld . ”
The researchers are now calling for good education aboutendometriosis treatmentamong healthcare providers .
Sylvia Freedman , work cobalt - writer and co - founding father ofEndoActive , said , “ EndoActive bear health professionals providing fertility advice in appropriate circumstances peculiarly as endo may affect fecundity . However , pregnancy advice , especially in relation to curing or treating this condition is inappropriate because baby are not treatment options and the advice is not grounds - free-base . ”
The discipline is release in the journalBMC Women ’s Health .
